tag:blogger.com,1999:blog-6235733697979948062.post2600026487650387805..comments2024-03-19T00:33:30.191-07:00Comments on our brain tumor cocktails and stories: Stephen Whttp://www.blogger.com/profile/00777652648990108253noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6235733697979948062.post-88471083362890879662017-03-23T12:56:12.711-07:002017-03-23T12:56:12.711-07:00I am new to participating on this blog but have be...I am new to participating on this blog but have been following for many months. Rhlgator, I just wanted to let you know that my sister was at 8 and 6mg of Decadron/dexamethasone for quite a few months after RT and we tapered it down slowly over the course of the next year. She's still at 1mg daily.Anonymoushttps://www.blogger.com/profile/01376981617188152630noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-21988501192848193752017-03-13T05:56:44.959-07:002017-03-13T05:56:44.959-07:00Logan Lo,
Thank you so much for help, and details ...Logan Lo,<br />Thank you so much for help, and details of your story and link. Im going to read it asapā¤Rhlgatorhttps://www.blogger.com/profile/00527283312782698071noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-8363247869999843242017-03-13T05:23:52.275-07:002017-03-13T05:23:52.275-07:00My wife was terribly confused for the first six mo...My wife was terribly confused for the first six months after radiation and surgery. It takes a very long time for some people to recover. The first week, I had to tell her she had cancer for the "first time" about 10 times. It was heartbreaking for me each time:<br><a href="http://loganlo.com/2015/12/im-all-by-myself.html" rel="nofollow">http://loganlo.com/2015/12/im-all-by-myself.html</a><br><br /><br>Moreover, there is zero reason to want/get an earlier MRI, I'm afraid. It won't show anything - especially in your case - because there is clearly swelling and damage from the SoC.<br /><br />My wife's first MRI didn't show much at all as there was so much swelling and radiation effect.<br /><br />It's a horror waiting but no sense in putting you and him through an MRI that won't provide anything meaningful.Logan Lohttps://www.blogger.com/profile/05539011850820749278noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-11418023259832952742017-03-12T20:20:52.896-07:002017-03-12T20:20:52.896-07:00Stephen, thank you so much for your reply. Today w...Stephen, thank you so much for your reply. Today was another bad day emotionally for my husband. He is completely distraught. He keeps saying, "I dont know what to do," and I cant live like this. and he doesnt know where he is, although we have lived in our home 11 years. I just keep explaining the situation to him over and over trying to reassure him. He asked me if he was in a car accident which wouldve caused his confusion. According to your response regarding edema from RT do you think I should wait for our scheduled MRI in 9 days, and increase steroid to maybe 2.5 ? Thank you so much for your time.Rhlgatorhttps://www.blogger.com/profile/00527283312782698071noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-69585871966601127482017-03-12T19:31:55.169-07:002017-03-12T19:31:55.169-07:00Typically the first post-radiation MRI is done abo...Typically the first post-radiation MRI is done about four weeks after the end of radiation. Radiation disrupts the blood-brain barrier and causes edema which will effect the MRI imaging, which is one reason they wait several weeks before imaging. Side-effects from radiation can include drowsiness/sleepiness, fatigue, headache, confusion. Radiation effects can be acute (manifesting during radiation), subacute (manifesting up to 12 weeks post radiation), or late. The confusion could certainly be the result of radiation injury.Stephen Whttps://www.blogger.com/profile/00777652648990108253noreply@blogger.com