tag:blogger.com,1999:blog-6235733697979948062.post2793005240800510396..comments2024-03-19T00:33:30.191-07:00Comments on our brain tumor cocktails and stories: Treatment tipStephen Whttp://www.blogger.com/profile/00777652648990108253noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-6235733697979948062.post-6329793905540826932018-02-06T13:05:50.959-08:002018-02-06T13:05:50.959-08:00Thomas's wife sadly is no longer with us and t...Thomas's wife sadly is no longer with us and there's a high probability he no longer checks this blog.<br /><br />I've heard reports that intranasal perillyl alcohol is highly irritating especially in the first few weeks. However it's not clear whether this is mainly due to the perillyl alcohol itself or also due to the ethanol solvent. Obviously disulfiram should be avoided if using perillyl alcohol diluted in ethanol.Stephen Whttps://www.blogger.com/profile/00777652648990108253noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-56840460559818824832018-02-06T12:43:12.483-08:002018-02-06T12:43:12.483-08:00And by the way, these products of Sigma Aldrich (p...And by the way, these products of Sigma Aldrich (perillyl alcohol ≥95% and 96%) are the following danger code:<br />"GHS07"<br /><br />Acute toxicity (oral, dermal, inhalation), category 4<br />Skin irritation, category 2<br />Eye irritation, category 2<br />Skin sensitisation, category 1<br />Specific Target Organ Toxicity – Single exposure, category 3Semyonhttps://www.blogger.com/profile/13802560978744551839noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-71337377560623419942018-02-06T12:34:25.092-08:002018-02-06T12:34:25.092-08:00Hello, Thomas!
We, like you, bought perillyl alco...Hello, Thomas!<br /><br />We, like you, bought perillyl alcohol at www.sigmaaldrich.com<br />(S) - (-) - Perillyl alcohol<br />≥95%, FG<br />https://www.sigmaaldrich.com/catalog/product/aldrich/w266418?lang=en®ion=US<br /><br />Did you order this perillyl alcohol? Because this firm has other options, for example 96%. And in studies in America, doctors are now using perillic alcohol 99%!Semyonhttps://www.blogger.com/profile/13802560978744551839noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-1027708568370707842017-04-16T16:43:45.606-07:002017-04-16T16:43:45.606-07:00Has anyone considered using this as a maintenance ...Has anyone considered using this as a maintenance therapy to try to prevent recurrence of LGG? It sounds like it can be acquired in the US already and perhaps my NO would consider it? Maria Teixeirahttps://www.blogger.com/profile/14187243809258713210noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-66349790747072814072017-03-09T10:23:32.883-08:002017-03-09T10:23:32.883-08:00Thank you.Thank you.mchaphttps://www.blogger.com/profile/11165313240284807458noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-45584296512594215172017-03-06T17:46:28.217-08:002017-03-06T17:46:28.217-08:00I don't have any personal experience with Dr. ...I don't have any personal experience with Dr. Clovis da Fonseca, but if you somehow manage to get hold of clinical grade perillyl alcohol, I posted some instructions on formulating it for use with a nebulizer on a different post:<br />http://btcocktails.blogspot.com/2017/03/perillyl-alcohol-formulation.html<br /><br />Also have no personal experience with formulating it this way, but the document on the above link was written by a pharmacology PhD.Stephen Whttps://www.blogger.com/profile/00777652648990108253noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-32050920939389579182017-03-06T17:12:29.310-08:002017-03-06T17:12:29.310-08:00It seems that nobody can comment on a personal exp...It seems that nobody can comment on a personal experience with POH.<br />-Michaelmchaphttps://www.blogger.com/profile/11165313240284807458noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-25800286127444550832017-03-05T11:15:40.108-08:002017-03-05T11:15:40.108-08:00I contacted dr Fonseca. He is kindly agreed to com...I contacted dr Fonseca. He is kindly agreed to come to visit the patient and to explain ways to administer POH. Now we have to decide is it worth it or no.<br />Can anyone share the experience? Is it worth it? <br />There are couple of things that still need to be clarified.<br />-Michaelmchaphttps://www.blogger.com/profile/11165313240284807458noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-81678565488234631792017-03-03T07:17:35.266-08:002017-03-03T07:17:35.266-08:00Hi,
We consider to start POH treatment for a woma...Hi, <br />We consider to start POH treatment for a woman in Moscow, Russia with (probably) recurrent glioblastoma. Is there any known better way to get POH in Moscow (or Europe) by a private person.<br />Is it possible to prepare solution home (with a help of professional chemist)?<br />What is an experience with Dr. de Fonseca? Is it still possible to invite him?<br />Is it worth it?<br /><br />Thank you in advance.<br />-Michael <br /><br />mchaphttps://www.blogger.com/profile/11165313240284807458noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-46588140369923283812017-03-02T22:01:08.140-08:002017-03-02T22:01:08.140-08:00Yes it's possible, what is your question?Yes it's possible, what is your question?Stephen Whttps://www.blogger.com/profile/00777652648990108253noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-56639511107343036552017-03-02T21:19:39.800-08:002017-03-02T21:19:39.800-08:00Hello,
is still possible to ask some questions abo...Hello,<br />is still possible to ask some questions about POH experience here?<br />Thank you!mchaphttps://www.blogger.com/profile/11165313240284807458noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-63799050247521625262017-02-12T18:39:40.039-08:002017-02-12T18:39:40.039-08:00Thomas - may I ask how you purchased from Sigma? W...Thomas - may I ask how you purchased from Sigma? We asked our doctor if he was willing to do so and he was but when he went to their website, he couldn't fill out their application because there was no option for an individual doctor.<br /><br />You can write me back at logan607 at hotmail if you have a moment.Logan Lohttps://www.blogger.com/profile/05539011850820749278noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-5953657742465774002016-09-21T13:29:04.839-07:002016-09-21T13:29:04.839-07:00Hello. I am curious as to the POH that any of you ...Hello. I am curious as to the POH that any of you have acquired, which conformation was it? Was it the (S)-(-) 96% or the (R)-(+) 99% one? Also, where were you able to acquire it, and at what cost? Any information will be so helpful! <br /><br />Thank you!!!Anonymoushttps://www.blogger.com/profile/17817081650197285510noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-17469436581338399482016-02-21T02:58:54.153-08:002016-02-21T02:58:54.153-08:00No, that would not be possible / secure for my wif...No, that would not be possible / secure for my wife to travel that long. Dr. Clovis Olando kindly offered to travel, the cost being his airline tickets, hotel + 3.000 euros for honorarium. Unfortunately, we could not afford that.Anonymoushttps://www.blogger.com/profile/01028489932636718731noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-37129028477841639502016-02-20T10:42:10.829-08:002016-02-20T10:42:10.829-08:00Hi Thomas,
did you travel to Brazil to see Dr. da ...Hi Thomas,<br />did you travel to Brazil to see Dr. da Fonseca? <br /><br />It would be nice if we would have a doctor in Europe that would offer this treatment and take care to prepare the drug. We are living in Austria, and it might not be that easy to travel to Brazil. On the other hand for a low grade brainstem glioma this looks like a good option.Anjokeshttps://www.blogger.com/profile/12430676263356370856noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-45678439823542583732016-02-20T01:56:32.495-08:002016-02-20T01:56:32.495-08:00Hi Christina,
I’m from Denmark. Generally, my wif...Hi Christina,<br /><br />I’m from Denmark. Generally, my wife has only experienced minor side effects (a slight nose irritation). Yet, when her thrombocytes have been low because of the chemo, she has had nose bleeding, causing her to pause for a few days. There has been a slight tumor regression after she began taking it, but whether this is due to POH or the other treatments components is not to tell.<br />Note that there is a greater chance for an effect of POH if the tumor is located in the midbrain area (cf. https://www.researchgate.net/publication/281843168_Perillyl_Alcohol_A_Pharmacotherapeutic_Report_Molecular_Genetics_of_Malignant_Gliomas_Disclose_Targets_for_Perillyl_Alcohol )<br /><br />Very best,<br />Thomas<br />Anonymoushttps://www.blogger.com/profile/01028489932636718731noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-85484352326875333432016-02-19T03:12:37.685-08:002016-02-19T03:12:37.685-08:00Hi Thomas, did it work for you ? Where there any s...Hi Thomas, did it work for you ? Where there any side effects ? Your name sounds a bit german :-). May i ask where you from ? <br />All the best<br /><br />Christina Anonymoushttps://www.blogger.com/profile/18301394270631759511noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-54974213956387285042016-02-15T16:22:33.225-08:002016-02-15T16:22:33.225-08:00Orlando da Fonseca is required to see the patient ...Orlando da Fonseca is required to see the patient in person in order to be allowed to help the patient with perillyl alcohol treatment. This means either going to Brazil, or paying for him to come to your country. <br /><br />See the previous post on perillyl alcohol<br /><br />http://btcocktails.blogspot.ca/2015/11/perillyl-alcohol.html#comment-form<br /><br />I know some have experimented with do-it-yourself formulation of the perillyl alcohol for nasal inhalation, with limited success (due to harsh stinging in the nose).<br /><br />See this page for reference:<br /><br />http://www.cancertreatmentsresearch.com/?p=602<br /><br />I cannot vouch for the safety of doing this at home without professional guidance. I do believe that perillyl alcohol has potential in the treatment of glioma, as seen in the clinical trials carried out in Brazil.<br /><br />Stephen Whttps://www.blogger.com/profile/00777652648990108253noreply@blogger.comtag:blogger.com,1999:blog-6235733697979948062.post-73118245679111438372016-02-15T13:56:02.862-08:002016-02-15T13:56:02.862-08:00Stephen, what are your thoughts on this?Stephen, what are your thoughts on this?oldcookie48https://www.blogger.com/profile/12689736008384755201noreply@blogger.com