So I read on astrocytomaoptions.com about the low dose naltrexone. I did not see anybody having it in the cocktail. So when would you take it? Do you add it to the mix or how do you incorporate it into the treatment?
Thank you for the info. So I got the link to the site that is selling it. Do I need to pretend that I have some other health problem or can I tell them that it is glioblastoma? Will they sell it to me for glioblastoma? I don't want to bother going to the doctor for prescription since they have online consult.
Anna, My husband was taking 20mg Melatonin at night then I added LDN we started at 2mg for 3 days then went up to 4mg then he had a seizure. We stopped the LDN and he hasn't had a seizure since.
Thank you Linda, Hmmm. It seems to be quite effective though. Maybe I will get it and do ultra low dosage like 1mg or so. Thank you very much for the info.
Anna, My husband was also unable to take Disulfiram/Antabuse they are sort of in the same family as LDN (I think) but was able to tolerate high steroids for a long period with negligible side effects. Our bodies are a wonder to themselves. I also thought LDN showed promise. Good luck
I have it on my cocktail. It is supposed to be taken at night, before sleeping. I take them together with other supps (see my cocktail for more info).
ReplyDeleteSome people complain of disturbing dreams when taking low dose naltrexone.
ReplyDeleteThank you for the info. So I got the link to the site that is selling it. Do I need to pretend that I have some other health problem or can I tell them that it is glioblastoma? Will they sell it to me for glioblastoma? I don't want to bother going to the doctor for prescription since they have online consult.
ReplyDeleteAnna,
ReplyDeleteMy husband was taking 20mg Melatonin at night then I added LDN we started at 2mg for 3 days then went up to 4mg then he had a seizure. We stopped the LDN and he hasn't had a seizure since.
Thank you Linda, Hmmm. It seems to be quite effective though. Maybe I will get it and do ultra low dosage like 1mg or so. Thank you very much for the info.
ReplyDeleteAccording to LDN Science website, recommended dose is 2 to 4.5 mg.
ReplyDeletehttp://www.ldnscience.org/low-dose-naltrexone/questions-and-answers
Interesting interviews on low-dose naltrexone here:
http://www.ldnscience.org/interviews/116-the-discovery-of-low-dose-naltrexone
http://www.ldnscience.org/interviews/164-ldn-supportive-care-for-glioma-brain-cancer-patients
Thank you.
DeleteAnna,
ReplyDeleteMy husband was also unable to take Disulfiram/Antabuse they are sort of in the same family as LDN (I think) but was able to tolerate high steroids for a long period with negligible side effects. Our bodies are a wonder to themselves. I also thought LDN showed promise. Good luck