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Tuesday, 26 January 2016

Ahmad progression

Dear all,
Mri results: growth in old tumor place..and newly developed lesions in many sites..
I can't breath..
I kept telling myself I don't
know if the cocktail will work..and I am trying to do my best..but I was sure hoping it will work..
We did everything..we brought all medicines and supplements..we even were on Keto diet..
It's God's will ..and I hope he gives me patience..
Sarah
at

25 comments:

  1. Melinda Voicu26 January 2016 at 11:04

    Hi Sarah,

    My heart is with you!, I am so sorry for this news,

    you mean , you can not do anything? another surgery, or a stronger cocktail, with medicinal marihuana,

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  2. Unknown26 January 2016 at 11:17

    No surgery..and can not get medicinal marihuana in Egypt..
    I guess nothing but avastin..

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  3. Jaki26 January 2016 at 13:45

    I'm so sorry about the MRI results. My husband had a second surgery 2 months ago to remove a large tumor and already it has grown back just as big. He started avastin last week and we will continue with cocktail and hopefully add cloraquine and DCA soon.Already take RSO. As long as our love ones choose to fight we will attempt to fight this monster with them.
    Jaki.
    Prayers for your husband and for you too Sarah.

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  4. Sethman26 January 2016 at 15:59

    I am so sorry. And on the Keto diet as well. That is devastating given how hard you've been trying. You and your husband will be in my prayers

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  5. Michael W26 January 2016 at 17:08

    Sarah

    Your news impacts all of us in a profound way. We are all a family here. So sorry for what you are having to deal with. Please keep us up to date as you have the time.

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  6. linda27 January 2016 at 02:33

    Dear Sarah,
    I was so sorry to read about Ahmad's latest MRI. Please know that you'll be in our thoughts and prayers. Keep strong.
    Linda & Alan (Australia)

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  7. Unknown27 January 2016 at 06:40

    Thank you every one..Yes I feel we are family..you are all in my prayers..I hope u never ever have bad results..
    Will keep u updated..
    Thank you

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  8. JudeGilford27 January 2016 at 16:40

    Oh Sarah, I am so sad for you and Ahmad. I have read this post over and over... I am so sorry. What I know for sure is that Ahmad couldn't have a finer champion. Your determination to find the best for Ahmad has been inspiring. You are right. You did everything. You will have no regrets. From a spiritual perspective, we never know why or how these things happen to our loved ones. You and Ahmed are in my heart and in my prayers.

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    Replies
    1. Unknown29 January 2016 at 04:13

      So is chance..He is in my heart too..I hope the best for you
      Thank you

      Delete
  9. daninha2127 January 2016 at 19:36

    Hi Sarah,

    I feel your pain. My husband's MRI just showed a new tumor that is not responding to TMZ. It's devastating! Sometimes I just get on my knees and cry to God because I don't know what else to ask him. My husband also was taking a lot of supplements and a couple of meds (because I'm not very familiar with the off label meds and because its hard to get them), eating better, and out of nowhere this tumor shows up. I'm trying to stay focus and keeping the bad thoughts away as much as possible because while he is breathing there is hope. Stay strong and keep fighting!! We are all in this together! And remember, God has given life to those who were dying, and we hear all the time about the miracles he performs in people's life. If its God's will he can cure your husband, and even if he had other plan for him, I believe he can change it, if he wants. Just like the man in the bible who was in bed dying and turned himself to the wall and asked God for another 10 or 15 years, and God granted his wish. If Avatin is what he can have, then go for it and keep praying that God can heal through that. This might sound silly, but every night my husband had to take TMZ, I would pray holding the capsules in a little cup, for God to help his chemo work. I'm very disappointed with this new growth, but God has already blessed us so much that I can't complaint, I can only humble before him asking for help and keep fighting! You are all in my prayers!!

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    1. Unknown29 January 2016 at 04:17

      Yess you are right...I thank God for my faith..this faith is protecting me from going crazy..I am submitting to God's will respecting it..and I believe he choses what's best..I pray for a miracle..and I know God is close..and he hears my prayers..

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  10. Annie28 January 2016 at 12:48

    I am so so sorry Sarah. I know that feeling - Dad had a huge tumor growth last September. It was heartbreaking. I don't know what to say, but I share everyone here's collective sadness for you. :( I hope things somehow turnaround

    Love Annie

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  11. Unknown28 January 2016 at 17:51

    So sorry Sarah for the bad news, you must keep your mind strong, is all what we (caregivers) must do, I know that is the best way to help.

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  12. Matias29 January 2016 at 09:56

    Hi Sarah! I´m so sorry to hear the news! Can they remove the new tumors?

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  13. lucy29 January 2016 at 19:55

    Sarah, I am wondering if you tried any immunotherapy? I guess you are very far away from the German clinics. Those are expensive but worth looking into. Also for all people who can't afford vaccines I know that dr. Nesselhut can also give virus alone without any other vaccines and the cost is about 1000euro for 3 shots. I emailed him about it and he said that yes he can do it. (I would add some verapamil and tmz to it)

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    Replies
    1. Unknown11 February 2016 at 07:31

      Hi Anna, did they mention if the shots need to be administered in the clinic o you can take it to your country? Thanks.

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    2. lucy11 February 2016 at 09:48

      I did not ask if you can take the virus home. I wold love to know that too. The Newcastle virus is highly regulated. So I would be very surprised if they could give it away. But I don't know. Maybe if they give you the first shot maybe they would allow to take the others home. I was trying to get this virus in my country.In Poland the veterinary institute has it but they can not legally give it to any patient. It might be different in other countries. It wouldn't hurt to call some Veterinary Univeristy/Institute and ask.

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    3. Unknown11 February 2016 at 11:28

      I know one Dr. in the US works with them and applies the shots in the US, but not sure if anyone else can do it, or if there are some paperwork/burocracy to fill.

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    4. lucy12 February 2016 at 06:39

      Would you mind to give the name of the US doctor who gives the virus in the US?

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    5. Stephen W12 February 2016 at 08:07

      Anna, I will reply to your question by email.

      Delete
    6. Unknown12 February 2016 at 08:13

      Thanks Stephen.

      Delete
  14. lucy29 January 2016 at 19:58

    Sarah, also unifontis has a Diflunisal treatment and synthetic cannabis treatment. Diflunisal is expensive it is 20-30 thousands I think.

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  15. Adrian11 February 2016 at 15:33

    I have a relative receiving Newcastle virus at IOZK. My
    understanding from the doctor there was that they are
    not allowed to export it -- a pity, since travelling to
    Cologne adds to the burden for my relative and their carers.

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