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Wednesday, 15 March 2017

looking for a new NO (pediatric)

Dear all,
Has anyone had any luck with an oncologist / or just family doctor willing to prescribed  CUSP9 ? Both of the  NO's at CHOP in Philly and at Rutgers in NJ are not even willing to prescribe Keytruda at this point. What makes our case even more complicated is that my son is only 17, so he still falls under pediatrics which limits our options even further. We are in New Jersey. Thanks!
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9 comments:

  1. Chosen and Loved15 March 2017 at 11:48

    The Jimmy Fund Clinic at Dana Farber (Boston) is recruiting pediatric patients for a Keytruda clinical trial (which I have chosen not to have my daughter take part in). My daughter's team has been very receptive to my suggestions.

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    Replies
    1. Olga15 March 2017 at 12:51

      thanks, let me check it out! where do you guys seen your oncologist?

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    2. Chosen and Loved15 March 2017 at 13:14

      At Dana Farber's Jimmy Fund Clinic.

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  2. Logan Lo15 March 2017 at 14:49

    Can you go through the doctors that authored the protocol and see if any of them are in your area? We found our neuro-surgeon that way, Dr. John Boockvar in Lenox Hill, NYC. He's great.

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  3. Olga15 March 2017 at 15:29

    Logan, where did you look up those doctors?

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    Replies
    1. Stephen W15 March 2017 at 16:43

      The original CUSP9 publication lists a number of authors including Dr. Boockvar. Of course not all of the other authors are necessarily MDs.

      http://www.impactjournals.com/oncotarget/index.php?journal=oncotarget&page=article&op=view&path[]=969&pubmed-linkout=1

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    2. Olga15 March 2017 at 18:25

      cool, thanks!

      Delete
  4. Unknown23 March 2017 at 15:57

    Olga, we are going into NY to see Dr. Boockvar on Monday to discuss CUSP9 for my (adult) sister. We are in NJ also, feel free to email me at sic_pub4 at yahoo.com if you want to trade info/notes, etc.

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  5. Olga27 March 2017 at 15:46

    Hi Janet,
    Thanks! I have just sent you an e-mail

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