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Tuesday, 27 March 2018

Mobility Just Keeps Getting Worse

Hi everyone
I have raised my daughters mobility issues in a previous post, and as there was no real response at the time, i can only gather that this must be fairly uncommon.
Her left side is now likened to Hemiparesis which is more common in stroke victims.
She is still able to feel and move her limbs, but has absolutely no strength at all, cant balance or walk.
I think also that she has become severely depressed, which i have also read can often make it worse.
Her last 3 scans have remained stable without further progression, and yet mobility has deteriorated very rapidly.
Very confusing?
Has anybody else experienced anything similar?
Regards
Martin
at

4 comments:

  1. Guy Lipof28 March 2018 at 14:52

    Hi Martin,

    My wife has experienced similar symptoms, but they were related to strokes caused by weakened blood vessels from recurrent brain tumor treatment. I'm surprised your daughter's scans do not show indications that are stroke like in nature.

    Nevertheless, my wife improved with physical, speech and occupational therapy. We started out with three times a week and after almost a year, she is done. She could not walk well, let alone up/ down stairs. Now she is back in the pool swimming laps twice a week.

    I strongly recommend getting patients out of the house and remaining active. Organized therapy is a great motivator, especially with a new face.

    Kind regards... Guy

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  2. SVG29 March 2018 at 03:33

    It is my experience that the kinetics of neural loss of function not always follows the kinetics of the change of tumor volume.
    One should of course see the MRI and the clinical picture to eventually explain more into detail.

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  3. Jenna2 April 2018 at 12:19

    Hi Martin,

    We were told the loss of mobility my father was experiencing was likely due to radiation damage. It has continued to get progressively worse despite his scans having been the same for almost a year now. He has other issues such as difficulty swallowing and short term memory loss too. I hope physical therapy can help your daughter.

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  4. bs196613 April 2018 at 16:42

    While its certainly experimental, hyperbaric oxygen treatment is a possible treatment for helping with radiation induced damage. It might be worth looking into.

    ReplyDelete