Good day to all!
Maybe Stephen or some of the blog readers will be able to comment. I will be very grateful.
Two months ago my sister had a second operation (I wrote about this on this blog a while ago https://btcocktails.blogspot.com/2019/10/good-afternoon-stephen-and-all-thank.html), and in early November we did an MRI. The doctor said that the tumor did not grow, but there was perifocal edema, which is a consequence of radiation. Literally - "this is not the edema to be feared." He said that he could last up to a year and leave himself. According to the doctor, everything is normal. But she feels much worse than some time ago. She constantly sleeps, the left side of her body works worse (before the operation, neither her arm nor leg worked at all, and afterwards she got better), there is a squint. The symptoms are very similar just to the growth of edema, about the same as before the operation. We reduced dexamethasone after surgery and had already reached 24 mg to 3 mg, but yesterday the doctors decided to increase it to 4 mg.
Doctors also said that she had vestibulopathy (dizzy), salt in the ear. Low potassium. We started drinking Boswellia about a week ago to make it easier to leave dexamethasone, but somehow it did not help. But they took only 1 capsule (according to the instructions on the bank, 3 per day is needed), because we were told that it should also be added gradually. Maybe it was necessary to take 3 cupsules? Until recently, we did not want to raise dexamethasone again, and we are now very worried about the deterioration.
Tell me, please, is it really possible to leave dex in our situation and how to do it right? Raise the dose (which has already been done), stabilize the condition, and then again slowly reduce it (before, 0.5 mg per week was removed approximately)? How to remove / control edema?
Thank you in advance for responding!
Maybe Stephen or some of the blog readers will be able to comment. I will be very grateful.
Two months ago my sister had a second operation (I wrote about this on this blog a while ago https://btcocktails.blogspot.com/2019/10/good-afternoon-stephen-and-all-thank.html), and in early November we did an MRI. The doctor said that the tumor did not grow, but there was perifocal edema, which is a consequence of radiation. Literally - "this is not the edema to be feared." He said that he could last up to a year and leave himself. According to the doctor, everything is normal. But she feels much worse than some time ago. She constantly sleeps, the left side of her body works worse (before the operation, neither her arm nor leg worked at all, and afterwards she got better), there is a squint. The symptoms are very similar just to the growth of edema, about the same as before the operation. We reduced dexamethasone after surgery and had already reached 24 mg to 3 mg, but yesterday the doctors decided to increase it to 4 mg.
Doctors also said that she had vestibulopathy (dizzy), salt in the ear. Low potassium. We started drinking Boswellia about a week ago to make it easier to leave dexamethasone, but somehow it did not help. But they took only 1 capsule (according to the instructions on the bank, 3 per day is needed), because we were told that it should also be added gradually. Maybe it was necessary to take 3 cupsules? Until recently, we did not want to raise dexamethasone again, and we are now very worried about the deterioration.
Tell me, please, is it really possible to leave dex in our situation and how to do it right? Raise the dose (which has already been done), stabilize the condition, and then again slowly reduce it (before, 0.5 mg per week was removed approximately)? How to remove / control edema?
Thank you in advance for responding!
Hi Yulia,
ReplyDeleteI am not sure how many mg of Boswellia are in each of your capsules, but the quantities you need to control Edema may possibly be significantly higher than what is indicated on the bottle. There was a study done on this, in which trial participants successfully used 4,200mg of Boswellia to control edema (see below link):
https://www.ncbi.nlm.nih.gov/pubmed/21287538
In my case, I also took over 4,000mg of Boswellia during my radiotherapy, alongside Celebrex (which is another medication which supposedly can have an effect on edema). I tolerated the Boswellia without any problems whatsoever. In my case, I was able to go through the radiotherapy with this approach, without any dexamethasone.
Best,
John