Treatment options available for second recurrence
Hi everyone,
Has anyone here or perhaps Stephen that would have any recommendations for a second recurrence?
My sister just had her third resection (second recurrence) and we are now looking for options for methyled:
wild-type/ATRX not in favour of mutation
IDH1 absent not in favour mutation
anti-GFAP positive
September 2020, after being diagnosed, She had her resection #1 (followed by temodal and radiation). Temodal for about 18 months
August 2022 Recurrence #1 followed by temodal for a month then rapid growth.
October 2022 Resection #2 followed with 1 month with PCV
Jan 2023 Recurrence #2
Feb 2023 Resection #3
She’s 47 and lives in Montreal.
Is 1 month enough to say temodal isn’t working anymore? And PCV for just one cycle ?
Is there anyone here who also have had multiple recurrences?
Thank you so much for your help.
This blog is practically dead. I suggest you ask the question on https://forum.virtualtrials.org/
ReplyDeleteHi, Frederique
ReplyDeleteI am a wife of a survivor of GBM, my husband had 2 recurence in same year 2014 , and 3 resection also in 2014. after the third resection, he followed radiation and temodal, and near that, followed Ben Williams brain tumor coctail. you should contact Ben Williams , he could help with your sister treatment.
God bless ,
here is the link to Ben Williams https://www.glioblastomamultiforme.it/en/the-story-of-ben-williams/