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Thursday, 27 August 2015

Joan's son - Cocktail profile

Our Coctail Story

Son had first resection of brain tumor Aug 20, 2015
6 weeks r/t and TMZ
5 day round of TMZ following after several weeks
Recurrence showed on first MRI
2nd resection Jan 26, 2015
Insertion of IVC filter Jan 27, 2015 for plural emoblism
March 2015 Started Infusion Therapy every two weeks (Avastin and Irinotecan)
April started Novocure
April 20, 2015 Gamma Knife Surgery for 2nd recurrence
Next two MRIs stable

our cocktail
Prescribed by NO:
*Metformin 1000 mg 2xdy
*Valproic Acid 250 mg 2xday
*Celebrex 200 mg 2xday
*Keppra 1000 mg 2xday
*Chloroquine Phosphate 250 mg 1xday
*Accutane 40 mg 1xday
*Lovastatin Verapamil 120 mg 3xday
*Visicare 5mg 1xday
*Lovastatin 40 mg 1xevening
*Sertraline 100mg 1xday
*Clonidine Transdermal patch dispenses 0.1mg/day
*D3 5000 u 1xday - prescribed to be used with Accutane
*Melatonin 20 mg 1xnight - Life Ext
*Lovenox 40mg injection for blood clots
*Zinc 220 mg 1xday (we are not taking this high dose and not taking any as
long as we are wondering about the interaction with chloroquine as Mike
brought up for Jeremy)
(Drug interaction concerns for cimetidine and metformin, cimetidine and
verapamil)--any advice would be welcome


Non prescribed by NO - he doesn't know we take these:
Adding DCA as soon as it arrives:
*Longvida Curcumin 500 mg 3xday on Empty Stomach
*Cimetidine 400mg 2xday
*Omepazole 20mg 2xday (except days right around chemo infusion 60 mg 2xday)
*Zinc 50mg 1xday (holding off on now due to concern about it interfering
with the action of chloroquine phosphate-I'm wondering about)
*Complete B Complex Life Extension 2 capsules/day
*Ultra Soy Extract 5 capsules = only 468.75mg of genestein
*Resveratrol with Pterostilbene 100mf 2xday (Life Ext)
*CoQ10 100 mg 1xday (Life Ext)
*JHS Coriolus Super Strength 600mg 6xday (give 3 twice/day on empty stomach)
*Optomized Saffron with Satiereal 2 capsules 2xday (recommended by Life Ext
doc for GBM)
*JHS Reishi Gano 161 hot water/alcohol extract 400mg (give 2caps am and 2
caps pm on empty stomach)
*Mega Green Tea Extract 725mg (give 5 a day on empty stomach) Life Ext
*European Milk Thistle (240mg Silyarin, 90 mg Silybin) give 3 a day - Life
Ext
*Super Selenium Complex (200 IU Selenium, 30 IU Vitamin 3) (give 1 capsule
1xday)  Life Ext
*Mega Benfotiamine 250 mg 2xday

Welcome any information you have that might help

3 comments:

  1. Hi! I´m currently taking cimetidine and metformin in a considerable quantity, with no ill-effects. See my published cocktail for more info!

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  2. Hi
    Is he taking verapamil and sertraline every day both of them? Is he taking Keppra every day or only during chemo? We took both for a few days but in smaller doses. We would like to take bigger doses too. Any side effects?

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  3. Is your son still using the Optune device? Just curious, we are waiting on my hubbies - insurance denied but we are appealing and opted to go ahead with it and pay for it until insurance kicks in. Wanting to hear feedback from someone who used it and their feedback. Thanks

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