Hi guys my mom is a newbie to CUSP9 - too forever for a doc to prescribe anthing
Ps. dR. Fox website for choloroquine (sp?) is a nightmare
Last night.."........
First, she felt dizzy, stared off with her " brain spinning" this kept off and on for a few minutes
Then the horror started. it seemed as if she was not there. So we called 911. She was conscious but was not responding to any paramedic requests such as the ability to squeeze their hand. We asked her 3x to smile and she didn't respond. She just lay there with her eyes open. At the hospital, she had progressive short term memory loss. For the first hour, she kept asking where she was and why she was there. Shortly recalling bits of information and eventually the medication she took before hand.
This was all between 9pm -2am
This was all between 9pm -2am
Today she is tired and sleeping but comprehending. Says it's nothing compared to other seizures she's had before and doesn't believe it's a seizure
At 3pm she took 5 pills of CUSP
At 3pm she took 5 pills of CUSP
Then temador
Then RSO
Went for a long walk ( 2 -3km ?). Felt good. Acted normal
At 7 -730 gave her 1000mg keppra
830 gave extract 2 capsules of broccoli/ sprouts/turmeric
9pm the nightmare started ......
Boom
cT scan ( couldn't find a vain for contrast ) said tumor has no changes ( jan 11th 1.9cm tumor still waiting for MRI date
No bleeding, no stroke
9pm the nightmare started ......
Boom
cT scan ( couldn't find a vain for contrast ) said tumor has no changes ( jan 11th 1.9cm tumor still waiting for MRI date
No bleeding, no stroke
1Celebrex/Celecoxib/200mg -started January 26/20162Ridaura/Auranofin 3mg-started January 26/20163Emend/Aprepitant 80mg- starter January 28/20164 Antabuse/Disulfiram 250 mg-started January 27/20165 minocycline- 50 mg started February 047 Temodar - 75mg - 1 / dayShe is also takesProzac / fluoxetine HLC 20 mgKeppra - 500 mg - 2 X dayMetformin - 250 mg -1 X dayMelatonin. - 20 mg - 1 X day ( stopped)DCA - 500 mg - 2 X day- two weeks on, one week off2- Aspirin - 81 g - 2 X day3- Maitaki fraction 4X - 3 X 8 drops / day.4 Ashwagandha ( Withania Somnifera)- 500 mg 1capsule / day5 Boswellia Extract - 65% Boswellic Acids- 3 X 2 capsules6 HonoPure/ by ecoNugenics 3 X1 / day7 Coriolus Super Strenht ( Coriolus versicolor mushroom 600 mg - 3 X1 per day.8 Ruta Graveolens 6 ch - 3-4 pills - two to three times a day under tongue9Dr Reckeweg S2 ( cal area phosphorica 3X - 2 pills X 2 day
Do you have a different time suggestion to give it to her ?
Do you believe it's a drug reaction ?
It's possible this was a drug reaction, but hard to know for sure. In the actual CUSP9 protocol, patients are in the hospital during the period of drug induction and carefully monitored for adverse reactions.
ReplyDeleteDid she start something new or change any of the doses prior to this episode?
Is she taking anything to counter the DCA side effects?
ReplyDeleteLoss of awareness makes this sound like a complex partial seizure to me
ReplyDeleteJust a quick note that I found this after my wife had a seizure as well; it's not very well reported but I'm hoping this is what happened to both of us.
ReplyDeleteDid your mom have any tea or coffee while taking the DCA?
http://www.thedcasite.com/DCA_protocol/Brain_cancer_risks.html
Sorry for the late reply.
ReplyDeleteShe did her last dose of DCA the week prior
She drinks green tea with her dca and a few cups during the day.
Stephen. The only thing that was new was THC/CBD oil that is apperently "organic"
After a few days break she took the same oil and started to panic, faint.. So we quit giving it to her and are looking into getting custom made oil