Friday 15 December 2017

Update Temodar + methadone + Optune TTF

Finally I can post an update of my Dad's treatment. He was diagnosed with an inoperable glioblastoma in December 2015. So it's his second anniversary this month :)
So far we've been lucky (neither growth nor recurrence but shrinkage and stable MRIs). His latest MRI showed that the edema has increased in size and causes speech issues. Unfortunately the latest MRI was done without any contrast agent so my Dad has to do another one in January. However, the doctor told us that the tumour itself looks pretty much the same but he's a bit worried about the edema as its growth suggests that something might be going on with the tumour. But he couldn't detect any significant growth or a new tumour so we're happy with the preliminary result  ('stable').
Compared to most inoperable glioblastomas my Dad seems to be doing really well, so I'm very grateful for that. Hopefully we'll know more in January!
My Dad's current treatment:
Temodar
Methadone
Optune TTF
Levetiracetan
Vitamin D
Omega 3
PSK (Coriolus versicolor)
Sulforaphane  (Broccoli sprouts)
All the best
Steffi
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8 comments:

  1. Stephen W15 December 2017 at 13:47

    Thanks for the update Steffi, I hope the MRI with contrast in January shows stability as well.

    ReplyDelete
  2. Unknown18 December 2017 at 13:26

    Can you please advice where possible buy PSK (Coriolus versicolor)?? from trustful source?

    ReplyDelete
    Replies
    1. Stephen W18 December 2017 at 13:46

      Many people here are using Mushroom Science PSK/Coriolus
      https://mushroomscience.com/coriolus-super-strength/

      This is the same brand formerly known as JHS Natural Products.

      Also, oriveda sells a PSP product that looks to be high quality.
      https://www.oriveda.com/coriolus_psp.php

      Delete
  3. Unknown18 December 2017 at 15:05

    Thanks a lot!

    ReplyDelete
  4. Unknown18 December 2017 at 15:33

    How possible put article here?

    ReplyDelete
  5. Matjaz19 December 2017 at 05:06

    If you order from Oriveda, you can send them an email for bulk order (1kg of pills) and I think you will get around 50% discount.
    I got 1kg of pills (~ 2850 capsules) for 600 €, which cover around 476 days - 6 capsules daily. I think that is the cheapest option if you live in Europe, since Mushroom science is from USA and you have to pay customs for every order.

    ReplyDelete
  6. Unknown19 December 2017 at 12:20

    Please advice where possible buy REAL Reishi? Thanks

    ReplyDelete

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