Hi all,
Today's MRI finally showed the reason why I almost lost my ability to walk or use hands. Surprise! Regrowth is here at the original site (brain stem). The MRI done just three weeks ago showed almost no tumor left, but I kept declining. My symptoms are quite different from the ones I had in February, but now it does not matter.
I need your advice about what to do next. On Monday they are having a consilium but I think they will just put me on Avastin, which I hesitate to do at the moment. We also discussed Optune but my NO thinks that a) It might not help, giving the location of the tumor and b) Our insurance will not pay for it. I, too, am not really ready to shave my head just yet :)
We called to Duke and MD Anderson right away, but they all want me to come over to discuss options.
Are there any trials or other options you would recommend?
Thank you.
Today's MRI finally showed the reason why I almost lost my ability to walk or use hands. Surprise! Regrowth is here at the original site (brain stem). The MRI done just three weeks ago showed almost no tumor left, but I kept declining. My symptoms are quite different from the ones I had in February, but now it does not matter.
I need your advice about what to do next. On Monday they are having a consilium but I think they will just put me on Avastin, which I hesitate to do at the moment. We also discussed Optune but my NO thinks that a) It might not help, giving the location of the tumor and b) Our insurance will not pay for it. I, too, am not really ready to shave my head just yet :)
We called to Duke and MD Anderson right away, but they all want me to come over to discuss options.
Are there any trials or other options you would recommend?
Thank you.
