Showing posts with label diflunisal. Show all posts
Showing posts with label diflunisal. Show all posts

Saturday, 6 August 2016

Where to get intravenous Diflunisal in Europe?

Diflunisal worked very well for my brother. He was fed via feeding tube 3 months ago then he improved very much on it but now today he is on the feeding tube again. We run out of Diflunisal bags few weeks ago. Tumor is small but edema is a problem. I don't want to buy the whole Diflunisal therapy at unifontis. Anybody knows where can I buy just the Diflunisal bags? Which pharmacy in Europe would sell it on doctors prescription? I was able to get intravenous aspirin but how to get the intravenous Diflunisal bags?

Friday, 17 June 2016

Chemo-Radiotherapy failed: Recurrence

All -

Mom's tumor has recurred in multiple areas in the operating bed right in the middle of first round of chemo and radiation. We had started her cocktail as well. Doctors have stopped chemo and radiation, calling it failure.

I need to decide on the next possible treatment option. We are still waiting for her genetic report. But this news is a huge setback as it does not leave time for us to try various things over a longer period of time. Surgery will not be feasible. I believe doctors will be cooperative in letting us avail of other treatments on compassionate use basis as well. But something probably needs to work more immediately now.

Please advise what options we should be pursuing here in US or in Germany.

best,
Jinesh