I have been battling brain swelling for several weeks now, after accidentally hitting my head several times. The boswellia I took helped somewhat, but not totally, so I reluctantly went on Avastin which has really been a game changer. My fog has lifted and I am once again steady on my feet.
In reading about Avastin, I can see that it can help with tumor shrinkage as well but when it is no longer effective, the tumor(s) come back with a vengeance. I have tried to find out the 'why' of this but the closest I have come to an answer is that when if the Avastin efficiently blocks the tumor's angiogenic pathway, the tumor evolves another way to grow, one that is often better and more efficient than before. Makes sense, which is why we subscribe to the carpet bombing paradigm promoted by Ben Williams.
And, in reading the publications in Stephen's library, I see that Avastin's anti-angiogenic properties can also possibly interfere with chemo/supplements' efficiency. Lovely...all the more reason to get off of it as soon as possible.
I have had two infusions so far, with only two side effects: chills at night after the first infusion only, and neuropathy in two of my toes that is still with me. I want to be on this medicine for the very shortest time necessary, really, only until I reach a full therapeutic dose of my supplements. I see it as just buying me time, keeping the swelling down until then.
But at what point do I stop taking it? There's the rub. If most of the terrible side effects, i.e., the clots, strokes, etc, occur after X-amount of months, I'll at least have statistical information to help me make my decision. If the more terrible side effects' timing is all over the place, from the first infusion to the 20th, then my decision will be harder.