Good morning all,
I have posted a story of my husband last year, but now I am in a black hole and l need help.
He was diagnosed with GBM IV October last year. He had big tumor in right frontal lobe over 6cm diameter. After some time we have found out that it wasn't total resection with some tumor left in corpus callosum and lodge. Till the end of the year he had finished his 6 week course of chemo and radiotheraphy. Then he was switched to monthly TMZ.
At that time we also have started vaccination with NCV because we didn't have fresh tumor tissue for DCV. A week after each vaccine he had seizures despite the fact being on Keppra and Depakine. For the first time we thought it was time coincidance. But after second he did extra scan and yesterday we found out he has two tumors - one in the lodge 5cm and second 4cm crossing corpus callosum in left hemisphere and huge oedema.
Today neurosurgeon told me they won't operate and that the treatment is over.
He is on meds from Cusp-nd protocol from the pretty begining, his tumor was MGMT promotor methylated so I don't know what has happened and what to do.
Can vaccination have such a huge impact on scan?
I don't know if we should try
rechallange it with metronomic TMZ,
try different chemo
go on Avastin
I thought we have a little more time together...