Friday 21 April 2017

All -

Been following for some time now.  My dad (age 62) was dx in November of this year; methylated but wasn't able to do more than a couple of weeks of TMZ due to platelets; tumor is growing.  We're in contact with Dr. Clovis from Brazil to obtain perillyl alcohol for him but, he needs to ship the POH to a lab or pharmacy and we're striking out everywhere on that.  Does anyone happen to know of a place in Wisconsin, Northern Illinois or DC that's done this for someone before or have any tips on how to find a place that will do this?  Everyone we've reached out to seems entirely bewildered by the request.  Thanks so much for your help!


3 comments:

  1. Dr. Raymond Chang from the movie, "Surviving Terminal Cancer" is able to make POH in his lab. He works out of NYC. His company is called Meridian Medical (or similar). He does nt take insurance and he charges about $700/hour.

    Mike B

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    Replies
    1. I'm told by a patient of his that his supplier no longer makes it; this is as of last month.

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    2. Hi Logan, thanks for pointing this out. I didn't realize Dr Chang was no longer offering POH.

      Mike B

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