Friday 30 September 2016

Thanks

Thank you Stephen and many others for passing on your helpful knowledge of GBM.

Unfortunately, I failed in my attempts to help make my daughter one of the longer term survivors of this dreadful disease.

So with a very heavy heart and great sadness I have to say my beautiful, very special 18yr old daughter Maddie lost her 13 month battle with GBM on Mon 26th Sept 2016.
Posted by at

20 comments:

  1. Hana30 September 2016 at 09:26

    I am very sorry Joanne.
    My prayers for you an family.

    ReplyDelete
  2. Hana30 September 2016 at 09:28

    And...
    you have not failed.
    You are a great brave mother.

    ReplyDelete
  3. Stephen W30 September 2016 at 13:05

    I can hardly imagine the sadness you must be feeling right now Joanne. It was by no means a personal failure. You certainly did everything you could with the resources that were available. Thank you for keeping us informed, and I sincerely hope you'll be able to find some peace in due time.

    ReplyDelete
  4. Melinda Voicu30 September 2016 at 13:23

    I am so sorry for your loss, I can not imagine greater pain than losing your child . Sincere condoleances.,,.:(
    Melinda.

    ReplyDelete
  5. AGM30 September 2016 at 15:10

    Dear Joanne, I'm so very sorry, I can't imagine your sorrow. And, you definitely did not fail. You, like the rest of us, are doing be best we can possibly do. Peace to you and your family.

    ReplyDelete
  6. linda30 September 2016 at 15:14

    So sorry Joanne, this is a horrible disease.
    Linda

    ReplyDelete
  7. Unknown30 September 2016 at 15:27

    I 2 am so sorry for your tremendous loss. And echo the others that u def did not fail. :-( as always, u will continue to b in my thoughts and heart.

    ReplyDelete
  8. SJFirinne30 September 2016 at 17:41

    I'm so sorry for your loss. Only if you had not fought would you have failed. I send you love and prayers, parent to parent.

    ReplyDelete
  9. Annie30 September 2016 at 18:49

    Joanne - I am very sorry. I know how it feels to feel like you've 'failed'. I struggle with that too. But I have given myself grace in knowing that I gave my Dad hope. We had hope even in the very end. If you were trying the things we all try, I'm sure you gave your daughter hope too. That is priceless when facing terminal disease.

    With love, and sincerest condolences,
    Annie

    ReplyDelete
  10. JudeGilford30 September 2016 at 19:53

    My thought, too, Joanne, was that this was a "no fail" test. We would never choose the reality that has been served to us, but we can go on because we did everything possible to affect a different result. Love, peace and strength to you and your family.

    ReplyDelete
  11. Chosen and Loved1 October 2016 at 07:17

    I am so very sorry to hear this news. You have done the very best you can fighting this monster with your daughter...you have not failed. I pray comfort for you and your family.

    ReplyDelete
  12. Michael W1 October 2016 at 09:43

    Joanne

    I am so sorry for your loss. I wish I had something profound to say, but there are no words that can east the pain. Be good to yourself.

    ReplyDelete
  13. Anne Marie1 October 2016 at 16:19

    Dear Joanne, I am so very sorry to hear this news. All of us in this amazing community are here because we are trying to do the same thing. There is no such thing as failure when you have done what you can against impossible odds and within a system that provides very limited options. Jude's "no regrets" is what keeps me focused and mostly sane. I hope you can recognise what you did achieve. I wish you peace and the solace of memories of happier times.

    ReplyDelete
  14. Unknown3 October 2016 at 11:26

    Dear Joanne, I cannot imagine what you must be going through right now. I wish you much strength and peace for the time ahead. I too want to echo what others have said here. You did not fail at all, quite the opposite. You fought hard alongside your daughter in the face of this awful disease.
    With much love,
    Alison

    ReplyDelete
  15. Matias3 October 2016 at 12:33

    I´m very sorry for your loss, Joanne. Please don´t blame you for anything, because you did everything possible to assist your daughter. May the happy memories you´ve made with her help you go through this difficult phase.

    ReplyDelete
  16. Unknown4 October 2016 at 06:32

    Many thanks to you all for your kind words, they really do help.
    Just taking a day at a time at the moment!

    ReplyDelete
  17. Jenna Beck4 October 2016 at 08:06

    Prayers for you Joanne!

    ReplyDelete
  18. Robert8 October 2016 at 11:22

    You have my sympathies and prayers
    Robert K

    ReplyDelete
  19. oldcookie4811 October 2016 at 16:46

    Joanne dear, I am so sorry for your loss. There is a saying, "There are places within our hearts that can only be filled with memories. And there are places in our souls that can only be healed by the gentle hands of time." I hope you find peace in that you were a loving, caring Mother. Bless you.
    Candy

    ReplyDelete
  20. Matthew Evans18 November 2016 at 17:29

    All my very sincerest love and best wishes
    May she rest peacefully
    Matthew

    ReplyDelete

Subscribe to: Post Comments (Atom)