Dear all,
Has anyone had any luck with an oncologist / or just family doctor willing to prescribed CUSP9 ? Both of the NO's at CHOP in Philly and at Rutgers in NJ are not even willing to prescribe Keytruda at this point. What makes our case even more complicated is that my son is only 17, so he still falls under pediatrics which limits our options even further. We are in New Jersey. Thanks!
The Jimmy Fund Clinic at Dana Farber (Boston) is recruiting pediatric patients for a Keytruda clinical trial (which I have chosen not to have my daughter take part in). My daughter's team has been very receptive to my suggestions.
ReplyDeletethanks, let me check it out! where do you guys seen your oncologist?
DeleteAt Dana Farber's Jimmy Fund Clinic.
DeleteCan you go through the doctors that authored the protocol and see if any of them are in your area? We found our neuro-surgeon that way, Dr. John Boockvar in Lenox Hill, NYC. He's great.
ReplyDeleteLogan, where did you look up those doctors?
ReplyDeleteThe original CUSP9 publication lists a number of authors including Dr. Boockvar. Of course not all of the other authors are necessarily MDs.
Deletehttp://www.impactjournals.com/oncotarget/index.php?journal=oncotarget&page=article&op=view&path[]=969&pubmed-linkout=1
cool, thanks!
DeleteOlga, we are going into NY to see Dr. Boockvar on Monday to discuss CUSP9 for my (adult) sister. We are in NJ also, feel free to email me at sic_pub4 at yahoo.com if you want to trade info/notes, etc.
ReplyDeleteHi Janet,
ReplyDeleteThanks! I have just sent you an e-mail