My daughter Debra was diagnosed with glioblastoma on December 19. The tumor was completely removed and she has regained all movement on her right side. About 2 years ago she was diagnosed with a very rare appendix cancer, which has not returned. The brain cancer is separate & considered unrelated. Debra is in her 5th day of radiation and chemo of TMZ. She lives in Boise, Idaho and getting her treatments at the MISTI.
My other daughter, Brenda, an RN and myself have thoroughly studied the available information on the drug cocktail approach to care. We are trying to put together a basic list of supplements for Debra to take. Both her radiologist oncologist and Neuro Oncologist seem to be supportive of supplements, with some restrictions. One thing that was mentioned was not to take any anti-oxidants during radiation because they could counteract the radiation. I was just wondering what you have heard and any suggestions you have on the supplements during and after radiation.
We are gathering all of the records to be sent to UCSF for their opinion and to see if she is a candidate for a clinical trial for newly diagnosed patients.
I have been viewing this blog for the last few weeks and now am ready to reach out.