This blog has been, at least for me, so affirming. Trying to solve a problem, trying to make our loved ones well, or at least, extend the expiration date. Here's my question, as I count pills and put them into their daily pill box for the week, and then I separate a different grouping of pills, those for morning from the afternoon pills, especially those that must be had with food, how do you do it? I don't mean, how do you do it every single day, that I don't mind. This blog is filled with amazing fighters, I'm a fighter. What I mean is, when the person you love, just doesn't want to take all of those pills, or eat when they don't feel like eating, to exercise when they just want to sleep all of the time. My husband eats barely 500-1000 cal a day these days, he just doesn't have the taste buds and quickly reaches satiety. It is heartbreaking to see fight is no longer there.
Just to back up a bit, my husband Greg is 61, otherwise healthy, a writer, a drummer, funny, and smart. He was diagnosed May 1, 2015 with GBM, non-operable. His MGMT is methylated. He just completed his 6th cycle of Temodar, 6 more to go if he decides to continue. He last MRI continues to show about a 10% reduction in tumor size, and it has held steady for a couple of months.
So I put it out there, when the tumor has taken that part of them that fights, how do you manage? How do you cajole them to do what they don't want to do? Sadly he feels like he is living only for the next chemo treatment, or days are spent waiting for the next pill? Yes, we do try to do things, visit friends/family, travel, etc. OK, that's it, thank you for allowing me to vent.