Wednesday 5 August 2015

Methadone

Dear all,

after several very positive cases of GMB treated with methadone hydrochloride in Germany, even our NOs began to believe in this stuff. It was not easy to get it, but today my husband took his first 5 drops. :)
The idea is to take methadon with metronomic Temodal... 
Other than that, he has a fast deterioration right now... Hope this stops somehow. 

Best,
Katja
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7 comments:

  1. Matias5 August 2015 at 15:22

    Hi!

    May I ask what are the studies about methadone that you showed to your NO?

    I hope your husband get better really quick, Katja!

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  2. Katja6 August 2015 at 15:15

    Hi Matias,
    there were no clinical studies so far. The idea to use methadone was based on the observations of a German palliative doctor. He noticed that in some metastatic cancer patients who was given methadone for pain management, unusual tumor responses occurred.
    Patients founded a Facebook group to support each other in taking methadone.
    In our clinic, 2 or 3 rGBM patients have taken metronomic Temodal plus methadone resulting in tumor responses and remissions. The patients were prescribed methadone by their GPs or other doctors. However, our NOs ar getting very interested....
    There is a paper in animals :
    http://www.ncbi.nlm.nih.gov/pubmed/24626197
    Best
    Katja

    ReplyDelete
  3. Matias6 August 2015 at 15:52

    This comment has been removed by the author.

    ReplyDelete
  4. Matias6 August 2015 at 15:54

    Thank you for your explanation, Katja! It seems very interesting indeed! I now saw in the article that it is related to opioid receptors, like low-dose naltrexone, which I´m currently taking, and might be interesting for you to check out.

    All the best!

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  5. Unknown7 August 2015 at 12:22

    Hi katja all the luck :)
    do u think this methafone can be taken during radiation??

    ReplyDelete
  6. HopeST3 December 2015 at 14:50

    My husband also got 1%Methadon drops from his German oncologist. He told us it helps to break blood brain barrier.

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