Dear fellow brain tumor battlers!
I have got a treatment tip that I would like to share with you. It is perillyl alcohol via nasal inhalation. It has shown good results in phase 1 and 2 trials (198 patients), and it is exceptional in having practically no side effects; see http://www.ncbi.nlm.nih.gov/m/pubmed/26175929/?i=2&from=perillyl Note page 1585:
“All patients were only under palliative symptomatic treatment because they had failed current standard of care for malignant glioma recurrence. For therapy of these patients, POH [perillyl alcohol] was diluted in mineral water with pH above 7 (in an attempt to alkalinize the acidity of peritumoral edema) and was administered in a common nebulizer by intranasal inhalation four times a day. The initial individual doses were 67 mg qid (268 mg total per day), which were escalated up to 133 mg (533 mg total). t was noted that adhesion to the protocol was high (> 95%). At the highest dose, POH occasionally caused nose soreness and in rare instances nose bleed. After 4 years under continuous, exclusive POH treatment, 19% of patients still remain in clinical remission, while drug side effects were almost non-existent. It was concluded that long-term POH inhalation therapy is a safe and non-invasive strategy with efficacy against recurrent malignant glioma.”
See also https://www.mskcc.org/cancer-care/integrative-medicine/herbs/perillyl-alcoh ol
There is only one person entitled to offer the treatment: Dr. Clovis Olando. He is co-operating with oncologists who wish to offer the treatment to their patients. Unfortunately, my wife’s oncologist is overly conservative – as many oncologists are, I am afraid – so she did not want to co-operate. If this is also the case with your NO, you have two options:
1: To consult Dr. Olando on a private basis. His email address is: firstname.lastname@example.org He is willing to travel.
2: If you cannot afford that, it can easily be self-administrated. While it is not possible to buy POH in a nose spray / nebulizer – since it is not approved yet – it is possible to buy POH and fill it in a nebulizer. There are probably many suppliers. We bought ours from Sigma-Aldrich. They only sell to companies, however, so it required the kind assistance of our family doctor. It is probably possible to find suppliers that sell to private persons.
All the best,