Hello. I have met a brain tumor twice. Once when it killed my mom in 2010 and now with my friend who is terminal.
I have found it difficult to find blogs dealing with end of life brain cancer. So I am hoping to find commaradrie here.
Do not misinterpret me as giving up hope. Not everyone wins the battle. Sometimes brain cancer does.
So is there anyone out there who has dealt with a terminal dx? You'll want to know that she has fought brain cancer for 5 years, done chemo, radiation, and had two brain surgeries. A gbm has taken over in her thalamus near her brain stem. It is inoperable and not possible to receive chemo.
In late November 2016 she was given 3 to 6 months. So we are 2 months in to the 6. She is under hospice care and lives with me and I care for her.
My questions are....is anyone dealing with the same thing? She can still walk and talk. She is still awake more than asleep. She does get moody. Her appetite is good. It does seem that she never sleeps deeply. She has struggled through constipation due to the opiates but I think I've figured it out. She claims the meds don't work and is at a level 8 pain. She'd be curled up and crying though....right? I try every 3 days or so to give her a quality of life day....like swimming or a movie or a restaurant. Otherwise it is bed to couch to shower to couch to bed.
Hope to hear from someone.