I'm trying to get Chloroquine Phosphate to add to my moms regimen. Here in California even with a prescription I have had a great deal of trouble of getting it filled. Let me know if you have any luck.
That said, my mom has been seen by 2 different oncologists after her recurrence and both were ok with her taking this.
From everything that I've read, Chloroquine Phosphate is no longer being manufactured in the US. We are purchasing it through an online canadian pharmacy called Planet Drugs Direct. We are also purchasing Celebrex through them as well, as our insurance denied paying for it. Even with goodrx, celebrex was about 110 dollars per month or so.
Through Planet Drugs Direct, we get a 3 month supply of Chloroquine Phosphate (shipped from Singapore) for like 35 us dollars or so. We also get a 3 month supply (200mg twice per day) of generic celecoxib for just over 100 us dollars. So the online pharmacy route is saving us some money there.
The nurses at our neuro oncologist were able to fax the prescriptions to them, and everything really went quite smoothly. I've been very pleased.
Lastly, our NO had no issues prescribing Chloroquine Phosphate, and asked that we get a baseline eye exam, have annual eye exams each year during treatment, and to be cognizant of any vision changes and immediately address any issues there.
Thanks Kendall! I will give that a try. My moms vision is so so bad at this time due to her surgery and recurrent growth that I'm not sure if she would even be able to tell if her vision got worse.
My mom's doctor said to get eyes checked at 6 months initially. I'm contemplating getting them checked at 3 months because my mom had trouble with vision due to her tumor too.
My son is on cloroquine phosphate and he has the p53 mutation. NO at MD Anderson was against all repurposed drugs and supplements. NO at UCLA said they are neutral but since it seems to be working, stay with it. We will see haw well things are going very soon. Next MRI is Monday.
Has anyone successfully substituted hydroxychloroquine? Commonly prescribed for rheumatoid arthritis, Plaquenil. My oncologist prescribed it for me without any problems, dosing is different of course.
Michael, I'm surprised the NO at MD Anderson was against repurposed drugs! I thought they'd be more willing.... I'm happy you feel it might be working; I like that feeling a lot (regardless of outcome). I hope your son gets good results soon. Take care!!
I apologize for not responding earlier. I did not see your post. For several months he was on chloroquine daily, then due to the P53 mutation/zinc issue, we began using it every other month. Given how long it takes the body to clear chloroquine, I don't know if the month on, month off approach was of any benefit. He has finished his 12 cycles of TMZ so he has been on chloroqine for about 2 months now. Yesterday he mentioned to me he is having some issues with double vision. I have not found this specific complaint to be associated with chloroquine, but took him off it anyway. I did notice that minocycline has a side effect of double vision, but the incidence is unknown, but apparetly this is an infrequent issue. For now he will only stop the chloroquine and will see an ophthalmologist. Again, I apologize for the late response.
I'm trying to get Chloroquine Phosphate to add to my moms regimen. Here in California even with a prescription I have had a great deal of trouble of getting it filled. Let me know if you have any luck.
ReplyDeleteThat said, my mom has been seen by 2 different oncologists after her recurrence and both were ok with her taking this.
From everything that I've read, Chloroquine Phosphate is no longer being manufactured in the US. We are purchasing it through an online canadian pharmacy called Planet Drugs Direct. We are also purchasing Celebrex through them as well, as our insurance denied paying for it. Even with goodrx, celebrex was about 110 dollars per month or so.
ReplyDeleteThrough Planet Drugs Direct, we get a 3 month supply of Chloroquine Phosphate (shipped from Singapore) for like 35 us dollars or so. We also get a 3 month supply (200mg twice per day) of generic celecoxib for just over 100 us dollars. So the online pharmacy route is saving us some money there.
The nurses at our neuro oncologist were able to fax the prescriptions to them, and everything really went quite smoothly. I've been very pleased.
Lastly, our NO had no issues prescribing Chloroquine Phosphate, and asked that we get a baseline eye exam, have annual eye exams each year during treatment, and to be cognizant of any vision changes and immediately address any issues there.
Thanks Kendall! I will give that a try. My moms vision is so so bad at this time due to her surgery and recurrent growth that I'm not sure if she would even be able to tell if her vision got worse.
DeleteMy mom's doctor said to get eyes checked at 6 months initially. I'm contemplating getting them checked at 3 months because my mom had trouble with vision due to her tumor too.
DeleteMy son is on cloroquine phosphate and he has the p53 mutation. NO at MD Anderson was against all repurposed drugs and supplements. NO at UCLA said they are neutral but since it seems to be working, stay with it. We will see haw well things are going very soon. Next MRI is Monday.
ReplyDeleteHoping results are good, keep us posted
DeleteHas anyone successfully substituted hydroxychloroquine? Commonly prescribed for rheumatoid arthritis, Plaquenil. My oncologist prescribed it for me without any problems, dosing is different of course.
ReplyDeleteMichael, I'm surprised the NO at MD Anderson was against repurposed drugs! I thought they'd be more willing....
ReplyDeleteI'm happy you feel it might be working; I like that feeling a lot (regardless of outcome). I hope your son gets good results soon. Take care!!
Oh, Michael, is your son taking it everyday? And for how long?
DeleteThanks!
Mark
ReplyDeleteI apologize for not responding earlier. I did not see your post. For several months he was on chloroquine daily, then due to the P53 mutation/zinc issue, we began using it every other month. Given how long it takes the body to clear chloroquine, I don't know if the month on, month off approach was of any benefit. He has finished his 12 cycles of TMZ so he has been on chloroqine for about 2 months now. Yesterday he mentioned to me he is having some issues with double vision. I have not found this specific complaint to be associated with chloroquine, but took him off it anyway. I did notice that minocycline has a side effect of double vision, but the incidence is unknown, but apparetly this is an infrequent issue. For now he will only stop the chloroquine and will see an ophthalmologist. Again, I apologize for the late response.