September 12, 2020
Hi Stephen & All,
Seeking your help relating to my Mothers Brain Tumor treatment, please help with the treatments, procedures and medicines. We are in India and we have very limited access to new and emerging treatments and hardly in trails for Glioblastoma.
My mother (Age in 60's) diagnosed with Brain Tumor on April 2020, had first surgery in last week of April 2020, didn't receive any biopsy report till July and no other(Radiation & Chemo) treatment due to COVID lock down in India, July biopsy report after first surgery just mentioned possible high grade glioma, She recovered well after first surgery but in July she started having seizures and MRI in July showed recurrence and she had second surgery in first week of August but this time shes having issues after surgery due CSF leak and till now we trying to get it fixed before going for radiation, in the mean time we are looking for options we have to stop tumor growth, I think we are getting late in radiation treatment, I think if we can start chemo before radiation it may help.
As per her CT scan today her tumor is growing very fast.
Biopsy details from last month below
On IHC - The tumor cells are positive for GFAP, IDH-1 and p53, Ki67 index very high (30%).
Impression - Histological features are suggestive of Glioblastoma, IDH-1 mutant, WHO grade IV, Corpus callosum.
August MRI - Recurrent parietal butterfly Glioma.