My wifes Cocktail (brain stem, low grade astrocytoma)

Dear All,

Finally I got the time to summarize my wife’s cocktail. I'm a follower of Stephens Astrocytoma option Site from day one.

Before I list the medication that we use right now here is a timeline for her case:

Sep. 2012 -> double vision when she looks to the very far right

Dec. 2012 -> MRI scan -> non-enhancing mass in the brain stem

Feb. 2013 -> light left side weakness, start with strict Ketogenic diet (less than 15g carbs per day)

March 2013 -> open/ extended biopsy -> low grade astrocytoma, IDH1 positive, 3% K67, stronger left side weakness as a consequence of the surgery 

May - July 2013 -> radiotherapy with 54 Gy 

October 2013 -> relaxing or the Ketogenic diet (less than 30-40g carbs per day)

Feb 2014 -> symptoms on with left side weakness for 14 days, MRI shows an enhancement within the old tumor mass -> doctors not sure if progression or necrosis, symptoms gone after 14 days without any treatment. We started a week before the symptoms appeared Longvita Curcumin, and stopped it then.

March 2014 -> Start of Temodar at 5 days on 2 days off non-standard dose dense (Tegwondo Regime, 100mg/m²).

March 2014- September 2014 -> stable scans, no significant changes, enhancing part slightly less intense 

September 2014 -> start of cannabis, vitamin D 

February 2015 -> MRI scan, small but significant reduction of enhancing and non-enhancing part of the tumor. First time that the non-enhancing part is changing in size after radiotherapy

March 2015 -> end of Temodar treatment

March 2015 -> change from Ketogenic to more Logi oriented diet (still less than 40g carbs per day) 

July 2015 -> another great MRI scan, enhancing part is gone, non-enhancing part again a bit smaller

August 2015 -> change from T4 to T3 as my wife has hypothyroidism. No problems with the change, blood counts are already in the therapeutical range as per Hercbergs articles.

November 2015 -> New MRI Scan. No changes in the size, stable scan. No enhancing part anymore. Not sure if the enhancing part was completly gone already in July or with the latest scan. I was not able to see it also in July.

March 2016 -> MRI Scan stable. No contrast enhancing. We are very happy with the result.

October 2016 -> Another stable scan. Forgot to enter the update from July. Still on the same cocktail. T4 supression now over a year without any side effect.

Here is the list of our supplements and medications:

Supplement	Product	Dosis per Day	Start of treatment
Maitake	Nutrisan Maitake D-Fraktion Forte	6	mid. 2014
Probiotic	Nutrisan Probiotische Caps Forte	2	mid. 2014
Pterostilbene	LifeExtension pTeroPure	2	end. 2014
Brokolli	Nutrisan NutriSGS	2	mid. 2014
Metformin	Metformin	2	mid. 2015
Berberine	GlycoX 500	2	end. 2014
Sensoril	Nutrisan Sensoril	2	end. 2014
Vitamine D3	Dekristol 25000	1	end. 2014
Boswellia serrata	H15 Gufic	6	start 2013
ECGC Green Tee	LifeExtension Mega Green Tea Extrakt	2	mid. 2014
Melatonin	MELATONIN 10mg	1	start 2014
Zink	Zink	2	mid. 2014
Canabis Oil	CBD:8%;THC:0,27%	40 µl CBD; 1,35 µl THC	end. 2014
T3	Trijodthyronin	0,025 mg	August 2015

We are considering to start also LDN. Perillyl alcohol looks also promissing, but we don't know where to get it in Europe. Suggestions what we should consider in addition are welcome.

She recovered from all symtoms of the suregery and the tumor very well and can live a normal live. We hope that the positiv trend of the last MRIs will continue and that something from our cocktail list is effective.