Hi -
Tomorrow is day 21 of 42 and Dad is still alive and still taking his meds (see previous post for my cocktail).
Some observations - his speech and gait are marginally better. For the past two weeks both the Oncologist and Radiation Oncologist (RO) commented each week that he is doing a littler better than the previous week. The RO said that he is cautiously optimistic. Dad holds steady at a 3 of 5 for strength on his right side. His thinking is sharper - my husband noticed that Dad doesn't pause as long while speaking, he used to really grasp for words and now he gets them out (or tries) faster. Dad told me that his brain is working better. No pain, no seizures.
Now for the concerns... Dad said he's hearing things. I'm not sure if he's hearing voices or just that what he does hear echoes. Does anyone else have this experience? I'm not sure if the cocktail could cause it, or radiation(?) I hope I'm not making him schizophrenic. Also he has been nauseous lately - which is new for us. The only recent changes to the cocktail were the additions of Reishi mushroom, Prozac, and I also got a new script for Plaquenil (he was taking pills that had expired in 2010). I'm on safari as we speak ;-)
Thanks all.
Annie
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Backstory: Diagnosed August 25th, scheduled for awake craniotomy Sept 17th, was ready with the 'donuts' marked on head, IV going, then Dr. came and told us the MRI showed the tumor had quadrupled and surgery was really not an option. EEG was borderline to begin with. We were sent home devastated. The very next day dad had a severe decline - our worst day yet. Dry heaves, pain that would not cease with oxycodone every 2 hours, complete loss of use of right side. Upped the dex one time (10mg) and thankfully recovered. Started chemo/radiation three days later. Were told to try Avastin or to wait for a 'rainy day' as Dad has not declined while on treatment. So far we wait. I can be persuaded to start if anyone has a strong case for it.
Update: Dad's 'echoes' went away. I didn't change anything so not sure what was the cause. Seemed to last just a few days.
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